12/1/2013: The DeVoe Family (Mark, Sue, Maggie & Markie) appeared on a local news broadcast yesterday with members of the Wizards of Winter to promote the upcoming concert being held to benefit the CRF in Easton, PA. Over 1,500 tickets have been sold for the event, a sellout! Click here to see the interview and watch the Wizards perform. This will be the third Christmas concert (fifth show overall) and by far the largest show the Wizards of Winter have performed on behalf of the CRF. Our thanks to the Wizards and the DeVoe family, looking forward to a great show!
Join us on December 6th in Wilmington, Delaware! Taste Of The Holidays offers tastings of a variety of beers, wine, and spirits while you enjoy gourmet food and live music. The event will host local vendors selling holiday arts and crafts. Even better is the event is sponsoring the CRF! As part of the event, guests can buy a ticket for $20 that enables them to select a bottle from the Wine and Spirits Wall, filled with 50 bottles of wine, whiskey, and more. All funds raised from the Wine and Spirits Wall will be donated to the CRF. If you’re in the area, check out the event and drink in the spirits of the season! Click Here to visit the event website.
11/14/2013: More and more people are doing their Holiday Shopping online. It’s easy, convenient and you can find some great deals. Now, you can even benefit the CRF by using GoodShops to do your shoppoing! Here’s how it works: Click Here to go to the GoodShops website. In the field where it says “enter cause name here”, type in CHM and then click on Choroideremia Research Foundation. You will then be able to access hundreds of online retailers, do your shopping and the CRF will get a percentage of what you spend! You may even book airfares, hotels and rent vehicles via GoodShops. It truly is that easy to help us achieve our goals! Go “GoodShopping” today and thank you!
11/1/2013: Rob and Lisa Volker (Lisa is a member of the CRF Board of Directors) from Cincinnati decided they wanted to raise some money for the CRF and have a great time doing it! They put together the “Strike Out Blindness” Bowling Night with help from a local bowling alley. Attendees bowled, played “Cornhole”, bought Raffle tickets and generally had an amazing time… And they raised a total of over $3,000! Rob and Lisa reported that many attendees commented on how much fun they had and they are planning on making this an annual event. Our thanks to Rob, Lisa and all their friends and family members who came out to support the CRF!
10/18/2013: For the fourth time, co-workers, colleagues, friends and family of Chris and Alis Moen gathered at the Delaware Center for Horticulture in Wilmington to take part in the Cure In Sight Wine Tasting & Silent Auction. Attendees were treated to live music, samples of fine wines and tasty gourmet finger foods as they bid on a wide variety of items from signed books and art prints to lavish vacation packages. This year’s event resulted in the largest amount raised, over $23,000! Our thanks to Chris, Alis and their team of volunteers for once again putting on a wonderful and fun event! We’ll see you next year at Cure In Sight V!
9/10/2013: When our members and supporters travel, many times they like to meet up with fellow CHMers, their families and friends. Just like our conferences, these times spent together are always special. Now, thanks to several generous CRF members and friends, there’s a way for you to spend time with other CHMers, have a place to rest your weary head AND benefit the CRF, all at the same time! Click Here for details on the program, or click the link on the left side menu bar titled “CHM Travel Program”. If you wish to become a Volunteer Host, the information is also on that page.
8/30/2013: On August 28th, the DeVoe family continued their non-stop pursuit of raising awareness for Choroideremia by sitting down for an internet radio interview. They discussed all aspects of CHM, from living with it in your family to research to raising funds and awareness. The interview is in two parts and can be accessed via the links below. Part One begins with news updates and ads, with the interview starting a few minutes in. Thanks to Mark, Sue, Markie and Maggie and bringing awareness to our cause!
DeVoe Family Interview, Part One
DeVoe Family Interview, Part Two
8/22/2013: Did you know that you can sit down, enjoy some delicious pancakes at an Applebee’s restaurant in your neighborhood and raise money and awareness for the CRF? It truly is that simple! Jeff Benelli recently organized a Pancake Breakfast at his local Applebee’s Restaurant in Pittsburg, KS and invited all his friends and family members to join him for breakfast. Applebee’s donates a portion of the cost back to the CRF and many attendees donated over and above the cost of breakfast. You can do this too! Click Here to visit the Applebee’s website and get all the details on how to it! Thanks to Jeff for “Pancaking CHM!”