3/6/2014: Members and supporters have asked about the development in the USA of the Argus II and of the Retina Implant being developed in Germany. All of these new technologies can get a bit confusing, so CRF Vice President Jeff Benelli was kind enough to put together a summary of these devices. Click here to read the summary of the devices (requires Adobe reader). These are exciting times in CHM research and this is just one avenue of restoring sight. The CRF is dedicated to funding the research that is saving the sight of CHMers around the world and your help is needed! Use this Donate Now link to make your gift today!
2/20/2014: Team CHM is looking for runners and walkers in the New England area to join the team and take part in the Run or Dye 5k in Hartford, CT on July 19, 2014! This is a very fun 5k where you exercise while being turned into a rainbow of color! As a bonus, you’ll be helping the CRF achieve its goal of saving the sight of those affected by Choroideremia! Finish off this fun day at a cookout hosted by Team Captain Cory MacDonald at his place! Click here to visit the Run or Dye page to get information on registering and to make a donation!
1/17/2014: The CRF is proud to report the findings published by Dr. Robert MacLaren and his team on the Phase 1/2 Gene Therapy trials for Choroideremia have surpassed expectations! This trial is occurring due to pre-clinical funding provided by CRF members and supporters, the Tommy Salisbury Choroideremia Committee and other entities. Our work is not yet done, and we encourage you to continue supporting the CRF so we may see even more amazing results like this! Click here to read the Press Release!
1/12/2014: As part of the CRF’s Million Dollar Challenge, Mark and Sue DeVoe are Dropping Calories for a Cure! They have both decided they need to drop a few pounds, and they are motivating themselves by raising money for the CRF while doing so! Click here to read Mark’s story and to sponsor him, or click here to read about Sue and sponsor and her. The DeVoes have accepted the challenge and you can too! Email Cory MacDonald today to discover how you can help!
12/20/2013: The Holiday is fast approaching and you’re wondering, “What is the best gift I can give to someone with Choroideremia?” The answer is simple: Our sight! Make your tax deductible gift today in honor of a friend or family member who is affected by CHM. This coming year is sure to be filled with exciting news in CHM research, but it’s only possible because of the funding provided by the CRF. Make your gift today by visiting our Donation Page! If you wish, use the “My Donation is Directed Towards…” link on the PayPal form to let us know who you are giving this gift in honor of. Thank you and our best wishes to you, your friends and family for a wonderful, safe and Happy Holiday!
12/1/2013: The DeVoe Family (Mark, Sue, Maggie & Markie) appeared on a local news broadcast yesterday with members of the Wizards of Winter to promote the upcoming concert being held to benefit the CRF in Easton, PA. Over 1,500 tickets have been sold for the event, a sellout! Click here to see the interview and watch the Wizards perform. This will be the third Christmas concert (fifth show overall) and by far the largest show the Wizards of Winter have performed on behalf of the CRF. Our thanks to the Wizards and the DeVoe family, looking forward to a great show!
Join us on December 6th in Wilmington, Delaware! Taste Of The Holidays offers tastings of a variety of beers, wine, and spirits while you enjoy gourmet food and live music. The event will host local vendors selling holiday arts and crafts. Even better is the event is sponsoring the CRF! As part of the event, guests can buy a ticket for $20 that enables them to select a bottle from the Wine and Spirits Wall, filled with 50 bottles of wine, whiskey, and more. All funds raised from the Wine and Spirits Wall will be donated to the CRF. If you’re in the area, check out the event and drink in the spirits of the season! Click Here to visit the event website.