Privacy Policy
The Choroideremia Research Foundation takes seriously our responsibility to maintain your privacy in all matters related to the Foundation. Specifically, we do not sell, rent or otherwise distribute to any individual or organization names, addresses or other information we receive through our newsletter, our website or other forms of digital or written communication.
|
6/10/2013: The CRF Home Office will be closing for vacation beginning Friday, June 28th and will re-open on Tuesday, July 9th. Please be aware there will be a delay in receipting and acknowledging of all gifts made to the CRF during this time period. If there is a CRF related concern that requires immediate attention, please email H. Eric Hartman, CRF Executive Director. To our friends and supporters in the USA, our best wishes to you all for a safe, happy and fun filled Independence Day Holiday!
5/30/2013: As part of her ongoing personal campaign to stay in shape, Katie Hrdy decided to do something fun while raising funds and awareness for the CRF: Participate in the Color Vibe 5k in New Hampshire. This was her first-ever 5k run. During this race, runners are covered in various colors of powder, resulting in a very fun and quite colorful time for all. Katie finished the 5k, looked beautiful in her colors and raised over $10,000 for the CRF! Congratulations Katie, and thank you!
5/22/2013: Almost 200 people gathered together on the shores of Lake Ontario in Rochester NY this past Sunday to celebrate Ostoberfest 2013, Mardi Gras Style! Attendees were entertained with live Cajun & Zydeco music, gave their taste buds a treat with authentic New Orleans delicacies such as Jumbalaya, Gumbo and Crawfish, and mainly just relaxed and had a great time. Best of all, over $40,000 was raised for the CRF! Our thanks to the Oster Family and friends who once again put on a fantastic event! (Pictured L-R: John Oster, CRF VP Chris Moen & CRF President Beth Foss)
5/10/2013: Crowds gathered at the Wilmington Film Festival in Wilmington, DE to view the East Coast Premiere of Driving Blind. Justin Purvis, one of the two brothers featured in the documentary, was on hand to speak about the filming and answer questions. Following the film, attendees gathered at Ryan’s Wine & Spirits for refreshments and wine tasting. Not only did the film receive rave reviews, a total of $6,400 was riased for the CRF! Our thanks to Justin, Chris & Alis Moen and all those who helped make this event a tremendous success!
 4/25/2013: Tara & Tom Driscoll decided to combine their love of lacrosse with raising awareness and funds for the CRF. The result was “See by the Sea”, held at Endicott College in MA this past weekend. Two college teams and 4 high school teams played in the day long event. Raffles were held, shirts, food and CRF merchandise were all available for sale. To date, the total is just under $20,000 raised! Our thanks to the Driscolls, their family, friends, players, coaches and everyone else who made this event a success! We’ll see you next year at See by the Sea 2!
 4/18/2013: The Coastal Jersey Parrot Head Club recently sponsored the “Aye for an Eye” Matey’s Ball in Seaside Heights, NJ. It was an eveing of great music, food, raffles, a silent auction and just all around fun! The CRF’s own Cory MacDonald even got into the act, singing a song with the headlining band, Jimmy & the Parrots. The final tally is not in yet, but we know the event raised thousands of dollars and brought awareness to the CRF! Special thanks to Mark Devoe, the Zukowski’s and the CJPHC for putting this together!
 4/2/2013: Congratulations to Dan Calhoun and his friends on their recent “Eye Believe” concert in Franklin, TN! Daniel has family members who are affected by CHM and wanted to do something to raise money and awareness, so he got together with his talented friends and performed a concert. To date, they have raised over $6,500 with gifts still coming in! Click the links below to view some the highlights of these talented young men and women as the performed to benefit all of us! Thank you!
Juhi and Jamie
Andrew Case
Jess and Jamie
Daniel and Sarah Ashby
 3/27/2013: On Sunday, March 24, (l-r) Adam Bediamol, Sharyl & Danny Boren and Jodi & Sean McLaughlin took on the Lavaman Triathlon with two goals in mind: First, to finish this incredible test of endurance combing an ocean swim, bike race and run. Second, to raise funds and awareness for the CRF! We are pleased and honored to report that all five team members accomplished both tasks! Special congratulations to Jodi McLaughlin for finishing third in her age group! At this point, the team has raised almost $23,000 towards the research that will save our sight! You can show your appreciation for this incredible effort by Clicking Here and giving your gift of thanks to the Lavaman Team!
|
Facebook Cause
Registered 501(c)3 Charity. Please click here for our IRS Form 990 report.
Donate Now!
Want to join us in the fight against Choroideremia? Donations are the most immediate way to support Choroideremia research. Donate Now! Ways to Help
There are many ways to make a difference! 
You, personally, can inspire others through letter writing to support Choroideremia Research and many other activities (they’re easier than you think).
Ways to Help
Privacy Policy
Message and Data Rates May Apply. Text HELP to 22828 for help, text STOP to 22828 to unsubscribe.
Subscribe for Smart Phones:
|
