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April 2014
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Privacy Policy

The Choroideremia Research Foundation takes seriously our responsibility to maintain your privacy in all matters related to the Foundation. Specifically, we do not sell, rent or otherwise distribute to any individual or organization names, addresses or other information we receive through our newsletter, our website or other forms of digital or written communication.

Accept The Challenge!

Our goal is to raise a Million Dollars in 2014 and we need your help! Email Cory MacDonald today for information on how you can accept the challenge and help us attain our goal!

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Support the CRF with AmazonSmile!

The popular shopping site has a new charity program called Amazon Smile. Now, when you do your shopping on, a portion of your eligible purchase can be donated to the CRF! Click here for all the details on how to sign up with Amazon Smile, so you can help raise money while doing your online shopping!

Team CHM Gets Ready For Lavaman!

3/24/2014: Members of the CHM Team have been training hard to not only tackle the Lavaman Triathlon on March 30, but to raise money and awareness for the CRF at the same time! You can help them by clicking here to make your donation today! Are you interested in recruiting your own CHM Team? The Join Team CHM link to the left has information on how you can get started, including a link to the Team CHM Blog! Join the team and get involved today!

Vision Bowl: Putting the “Fun” in Fundraising!

3/18/2014: On March 16th, well over 100 bowlers and well wishers gathered together at the Ale House in Wisconsin to participate in the 2nd Annual Vision Bowl! The Ale House was crammed full of bowlers, friends and family members of several CHMers to bowl, buy raffle tickets and bid on silent auction items and have a great time. Final numbers are still being tallied, with preliminary results show the event raised almost $11,000! Our thank to the coordinators, volunteers and event sponsors that made this such a fun and successful event! We’ll see you next year!

Argus II and Retinal Prosthetics

3/6/2014: Members and supporters have asked about the development in the USA of the Argus II and of the Retina Implant being developed in Germany. All of these new technologies can get a bit confusing, so CRF Vice President Jeff Benelli was kind enough to put together a summary of these devices. Click here to read the summary of the devices (requires Adobe reader). These are exciting times in CHM research and this is just one avenue of restoring sight. The CRF is dedicated to funding the research that is saving the sight of CHMers around the world and your help is needed! Use this Donate Now link to make your gift today!

Team CHM Recruiting Members!

2/20/2014: Team CHM is looking for runners and walkers in the New England area to join the team and take part in the Run or Dye 5k in Hartford, CT on July 19, 2014! This is a very fun 5k where you exercise while being turned into a rainbow of color! As a bonus, you’ll be helping the CRF achieve its goal of saving the sight of those affected by Choroideremia! Finish off this fun day at a cookout hosted by Team Captain Cory MacDonald at his place! Click here to visit the Run or Dye page to get information on registering and to make a donation!

Gene Therapy Breaking News!

1/17/2014: The CRF is proud to report the findings published by Dr. Robert MacLaren and his team on the Phase 1/2 Gene Therapy trials for Choroideremia have surpassed expectations! This trial is occurring due to pre-clinical funding provided by CRF members and supporters, the Tommy Salisbury Choroideremia Committee and other entities. Our work is not yet done, and we encourage you to continue supporting the CRF so we may see even more amazing results like this! Click here to read the Press Release!

The DeVoes are Dropping Calories!

1/12/2014: As part of the CRF’s Million Dollar Challenge, Mark and Sue DeVoe are Dropping Calories for a Cure! They have both decided they need to drop a few pounds, and they are motivating themselves by raising money for the CRF while doing so! Click here to read Mark’s story and to sponsor him, or click here to read about Sue and sponsor and her. The DeVoes have accepted the challenge and you can too! Email Cory MacDonald today to discover how you can help!