5/10/2013: Crowds gathered at the Wilmington Film Festival in Wilmington, DE to view the East Coast Premiere of Driving Blind. Justin Purvis, one of the two brothers featured in the documentary, was on hand to speak about the filming and answer questions. Following the film, attendees gathered at Ryan’s Wine & Spirits for refreshments and wine tasting. Not only did the film receive rave reviews, a total of $6,400 was riased for the CRF! Our thanks to Justin, Chris & Alis Moen and all those who helped make this event a tremendous success!
4/25/2013: Tara & Tom Driscoll decided to combine their love of lacrosse with raising awareness and funds for the CRF. The result was “See by the Sea”, held at Endicott College in MA this past weekend. Two college teams and 4 high school teams played in the day long event. Raffles were held, shirts, food and CRF merchandise were all available for sale. To date, the total is just under $20,000 raised! Our thanks to the Driscolls, their family, friends, players, coaches and everyone else who made this event a success! We’ll see you next year at See by the Sea 2!
4/18/2013: The Coastal Jersey Parrot Head Club recently sponsored the “Aye for an Eye” Matey’s Ball in Seaside Heights, NJ. It was an eveing of great music, food, raffles, a silent auction and just all around fun! The CRF’s own Cory MacDonald even got into the act, singing a song with the headlining band, Jimmy & the Parrots. The final tally is not in yet, but we know the event raised thousands of dollars and brought awareness to the CRF! Special thanks to Mark Devoe, the Zukowski’s and the CJPHC for putting this together!
4/2/2013: Congratulations to Dan Calhoun and his friends on their recent “Eye Believe” concert in Franklin, TN! Daniel has family members who are affected by CHM and wanted to do something to raise money and awareness, so he got together with his talented friends and performed a concert. To date, they have raised over $6,500 with gifts still coming in! Click the links below to view some the highlights of these talented young men and women as the performed to benefit all of us! Thank you!
Juhi and Jamie
Jess and Jamie
Daniel and Sarah Ashby
3/27/2013: On Sunday, March 24, (l-r) Adam Bediamol, Sharyl & Danny Boren and Jodi & Sean McLaughlin took on the Lavaman Triathlon with two goals in mind: First, to finish this incredible test of endurance combing an ocean swim, bike race and run. Second, to raise funds and awareness for the CRF! We are pleased and honored to report that all five team members accomplished both tasks! Special congratulations to Jodi McLaughlin for finishing third in her age group! At this point, the team has raised over $20,000 towards the research that will save our sight! You can show your appreciation for this incredible effort by Clicking Here and giving your gift of thanks to the Lavaman Team!
3/7/2013: Nick Tuftnell suffers from Choroideremia. Over a year ago, he made the decision to participate in the Phase I human genetic therapy clinical trials in the UK. Now just over one year out from the treatment, Nick was interviewed by the UK’s Daily Mail about his experiences so far with the genetic therapy. There is also commentary from Dr. Robert MacLaren, lead clinician in the trials. Nick, we thank you for your bravery and willingness to be part of this ground-breaking research! Read The Article
2/22/2013 – Barb and Keith Cameron recently hosted Vision Bowl 2013 in New Berlin, WI. Over 160 people showed up for afternoon of bowling and fun! We are happy to report they raised approximately $9,000! Thanks to the Camerons, their friends and family for this amazing effort on behalf of the CRF! Special thanks to Linda Rosland for her integral part in making this event a success!
2/18/2013 – CRF Interim Executive Director H. Eric Hartman was recently interviewed by Fox 8 in New Orleans about his artwork, adjusting to CHM in his life and his work the with CRF. Great job, Eric! Click Here to see the interview and help spread the word!